This page is dedicated to providing updates and resources for the sickle cell community amid the current COVID-19 public health situation. Please continue to check back for more updates and information.   

SECURE-SCD Registry

This registry is designed to capture pediatric and adult COVID-19 cases that are occurring across the world in patients living with sickle cell disease. The goal of the registry is to report on outcomes of cases of COVID-19 in this population of patients. We are asking providers caring for these patients to report all of their cases of COVID-19 to this registry.

SCD Association of America COVID -19 preparedness recommendations 

With COVID-19 on the forefront of nearly everyone’s minds, the
Medical and Research Advisory Committee (MARAC) at SCDAA wants to provide information to our sickle cell community. Educating yourself about the coronavirus
reduces anxiety and empowers you to protect yourself – and your family – from getting sick.

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